Thursday, February 24, 2011

Follow, follow, follow, ... follow the yellow brick road ...

My very first answered prayer came at age five. There was someone I was very attached to that had gone away and I was missing them. And one summer night (while I was supposed to be sleeping but instead I was waiting for my mama to get home from choir practice), I prayed with all my heart that God would please let me see that person just one more time. I may have even begged, I don’t remember, but I do know it was a fervent, heart-felt sincere prayer.

And the next day ... yep, the NEXT day, this person came to see me to tell me goodbye. And I knew that God had heard me. It was a pretty powerful revelation.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


Yesterday was chemo eight of twelve. And the past week or so I feel as if I have hit a brick wall. Chemo is cumulative so it’s understandable that the strength I had at week 3 or 4 is now diminished at week 8. I’ve been praying for more strength, more energy and realized today that maybe what I need to be praying for is acceptance.


My infusion therapy nurse, Kerry, was an angel in scrubs as she accessed my port (read stabbed me in the chest with a needle. But really, it's no big deal. I love my port.) and inquired about my constitution.


I immediately started telling her just how weary I am. How I don’t feel like doing much of anything, even eat. And, yes, people, it’s bad when I don’t want to eat! I said that I feel empty and depleted and whiney and pathetic and AWFUL. And she stopped, looked me in the eye and said, You are the most vibrant person I have seen this week!”


She reminded me that I am fighting cancer here, not receiving weekly botox treatments. That the effects of chemo are stacking up against me but that it’s clear evidence that the meds are doing their job. That housework and the rest of my life will wait for me. That maybe I’m being much too hard on myself. I hugged her, squeezed her and thanked her. She said that I had blessed her, but I can’t possibly see how. She was the first little present of the day.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


Chemo eight was uneventful, painless and a breeze. Snagged a power nap and woke to the nurse removing my blood pressure cuff. And since it was an early ‘out’, we headed to the café downstairs to grab some lunch and kill time until my 3:00 oncology checkup appointment.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


Dave and I got separated in the lunch crowd and when I rounded the corner to the seating area and scanned the horizon for my Dave but it was another, different but familiar, face looked back at me and I read the words on his lips, “Is that Darlene?”


Lately, like since I lost my hair, I am convinced that I no longer resemble the person formerly known as me, so I introduce myself to people all the time. And yes, they tend to look at me like I am nuts, smile and say .. “I know who you are!” So I was relieved (and grateful!) that right off the bat, hair or no hair, crazy hat or not, my friend recognized me. We’ve known each other since we were six but we looked really, really different then.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


Giant, smooshy hugs ensued. He was there with his beautiful wife and sweet mama, also a patient at MDA. We lunched together and shared memories and our cancer treatment routines and before I knew it, nearly two hours had passed. I was recharged. And grateful for my second gift of the day. I figured this was God’s way of saying, “I know you have had a really bad week and you probably don’t think I am even paying attention, so here ya go. You’re welcome.”


Life is so strange. Just when you think you finally know who you are, where you’re headed, what your life is all about God throws a few detours, obstacles and mountain ranges in your path. It’s all good though sometimes hard to swallow. Having cancer is nothing like I thought it might be. My reaction to having cancer is nothing like I thought it would be. Chemo and M D Anderson are not at all like I imagined they would be.


God thought I needed a scenery change. He also decided maybe I needed a “makeover”. And whatever illusions I had about myself and mortality, He decided to rewrite and edit those as well. But, He also made sure that all the groundwork was in place for me to be treated at the best possible place on Planet Earth. He lined up all the dots and dashes, laid a big ole yellow brick road and set me on it with my own personal Tin Man (who happens to have the biggest heart I’ve ever seen.) There have been no wicked witches or flying monkeys. Only beautiful, beautiful munkins and lovely fairy godmothers all along the way.


I have no idea what’s coming next but I’m not afraid. And I know that if God wants me tired .. who I am to argue? Maybe it’s His way of making me stop and think and be in awe of how He works. Like when I was five. Is He something, or what?

Saturday, February 19, 2011

My MDA good fairies

This was week seven of twelve. More than halfway through the first round of chemo, I am experiencing some new side effects. My mouth feels a little scorched. Not really burned, like maybe I've eaten too much salt? And additionally, I've cut out all added salt to my diet because I am so sensitive to it. I find myself eating more (and brushing my teeth more) just to get rid of the bad taste in my mouth. I'll talk to the oncologist about it next week.


I thought the nose bleeds were subsiding a bit but they seem to have escalated a bit this week. I'm sure that this is all just 'chemo territory'. All the cells that multiply rapidly are affected whether they are cancerous or not. So mucous linings (nose, mouth) are susceptible to the power of chemo just like the Herschel cancer cells are.


My energy seems to be at an all time low. I didn't think it could get worse but I'm actually napping a little during the day. I'm not really sleepy, just so tired I need to lie down and then sleep comes. And I tell you all this not to complain (it could all be so much worse, couldn't it?), but just to let you know what's happening with my treatment.


The 4.9 lbs I supposedly gained last week lost 3.4 of their hold on me this week. I think it was a fluke. I'd been holding steady so a nearly five pound weight gain was an unpleasant surprise. Still, all this inactivity has to come into play at some point. I'm going to ask the doc if I can start Weight Watchers just to keep the extra pounds at bay. I think I know what she'll say. I think she'll tell me to quit worrying about it and go on Weight Watchers when I'm done and healthy. But it never hurts to ask.


Now. About these photos ... Dave refuses to take photos where I am not smiling. He does all these goofy faces in an effort to make me smile. I resist as long as possible just to see how far he'll go. Eventually, I am silly putty and he gets the photo he's after.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010



I'm grateful for his presence, always. And I'm especially grateful for his lovable support now. The only time we butt heads is when his protective nature goes into overdrive and I resist being 'taken care of'. Fortunately, it doesn't happen often. I think we laugh more than the average couple .. of course we are both infinitely entertaining .. (at least to each other.)


There are some other folks I am grateful for as well. One of the first people we see on our weekly trips to MDA is a lady attendant in the parking garage. She always tells me how pretty I am, asks how I am feeling and wishes God's blessings on me. I've come to look forward to her smiles. She starts my MDA day off on a sunshiney note .. and when she's not there I miss her.


My first stop every MDA visit is to have blood work to make sure all my counts are within line to continue my therapy. I've learned to ask for Miss Tori. She's the fastest, most painless needle in the west. The girl knows how to stick me perfectly each and every time.


And in chemo there a nurses aide named Miss Carol who always makes my visit pleasant. She's warm and friendly and welcoming. The really bad day when I had my port installed I didn't see her until it was time to go and I let her know that I had missed her! It's so nice to have these familiar faces to look forward to. And I know that I am not the only one they shower their sunshine on.


Dave and I talk a lot about when we win the lottery what we will do with all those countless millions. Since my cancer diagnosis, some of the things on that list have changed. And there are new recipients on the list, including these three ladies. I would love nothing more than to hand them a big check someday and thank them for the comfort, smiles and love that they shared with me weekly during my cancer journey. In the meantime, last week I took them all a dozen Dirt Road Heaven eggs. As eggs go, they're pretty priceless, you know?


Sunday, February 13, 2011

Girl's Day Out!

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010Darlene & Bert, 2.9.11


Last week's chemo was a girl's day out. I can't remember the last time my sister-in-law and I had a day out together but clearly it's been far too long. Even a chemo day was fun with her along! I was anxious to share with her that this is 'no big deal' and we had a perfect day together.

Bert (aka "Roberta") has been in my life since I was eight years old. She and my brother started dating when they were 16 and married when I was 12. I can't remember a time when I couldn't depend on her for support, a laugh or a kick in the pants when I needed one. She was the second person I called when my mammogram clearly indicated I had a big problem.

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

This was No. 6 of 12 sessions in round one. It was effortless. My blood draws are getting easier now that I know who to ask for and the insertion of my port needle is painless. Chemo then merely becomes a plumbing issue when they hook up the bags of meds to the tubing inserted by the nurses at infusion therapy. We've got this thing DOWN.

Apart from the formidable fatigue (I've never felt this tired in my life!), the only side effects from chemo this week are joint aches that make me feel like I'm coming down with the flu, a little bit of insomnia and some change in taste with regard to food. Sometimes nothing tastes good. Despite that fact, the mean old scale says I gained a whooping 4.5 lbs. last week. THAT is just so wrong ..

It's been three weeks since Dave shaved my head. And since then, the only time I've left the house was to go to my weekly MDA appointments. But this week, me and my bald, hatted self went to the grocery store. And it was fine. I didn't see anyone run screaming from the produce section as I approached and frankly, I wasn't really paying any attention to how people looked at me. Maybe I have achieved some level of acceptance, finally.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


Tomorrow is one of my all time favorite holidays. I love Valentine's Day and ordinarily I’d have bought or made cards and gifts weeks ago in preparation for this day when we share our love with those closest to us. I have two precious little girls and one precious little boy that I (were I myself) would have showered with silly heart shaped trinkets, toys and candies proclaiming to each how dear and special and loved they each are.

Not one for moderation, I’d also shower heart-shaped greetings on my big kids, Jared and his beloved Mikey and Ashley and her adored Prince Charming, Hooch. Dave would get the lion’s share of my red crepe-paper love fest and, if there were money enough, a special dinner or trip to some place where we could enjoy each other, remember how we came to be and express our gratitude for this love that came in mid-life.

But the truth is I’ve been so doggedly focused on myself the last three months that I almost forgot it was coming. There are no Valentines bought, no sugar cookies in the oven, no foil wrapped candies, no red plush toys … no nothing.

I’ve dropped the big Valentine’s Day ball big time.

Or have I?

Maybe (and this is a hard pill to swallow) I have just decided to shower myself with love. A nap. Another big glass of juice. A book and bed. The permission to be bald and not feel rotten about it.

So to all my loved ones please forgive this time of self absorption. Please don’t think that my obsession with my healing is any indication that my love for you is diminished or that my lack of thoughtfulness is proof of anything except that I desperately want to be well for you and for me .. So here’s to next year and 365 days of love until then.

Happy Valentine's Day Peeps!

Friday, February 4, 2011

The Good, The Bad & The Ugly

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
I have lost my hair but I still have my sense of humor - mostly.

The Good (Or The Really, Really, Really Good):

I saw my oncologist on Wednesday for the first time since I started chemo. I like her so much. She's so warm and friendly and spends as much time with us as we need. I tell her each time I see her that I am glad she's there.

She asked me if I felt any difference in the tumor's size. It hadn't even occurred to me to check. My girls and I have had a tiff. We're not speaking. So I was really surprised, when Dr. M. couldn't "find" Herschel and I had to point him out to her, that he was considerably smaller, ill defined and not nearly as dense. WOW! Only five treatments in and we're seeing significant response to chemo. Thank you, God! Thank you, Dr. M.!

We're still on track for the remaining seven treatments of this round and the additional twelve week session to follow this one. I have a consult with a breast surgeon in March so surgery is still part of this equation but clearly we're talking (hopefully!) about less of a surgery.


The Bad (but it could always be worse):


I left my jacket (one I love) in my chemo room but it wasn't found by anyone so I guess it's gone. I just hate losing things. But I realized I had that jacket for more than fifteen years and I got it on sale at the end of the season for $40. so I really can't grieve for it except it was black suede and crochet and I really, really liked it.

(Really Darlene? Is this newsworthy? No .. but I needed a "bad" .. so .. shup.)


The Ugly (or I Can't Believe She Did It!):


So there she was, sitting across from me on the sofa. Her husband was the patient but he looked healthy so it took me a while to figure it out. They were fortyish, affluent, professional yuppie-types. She was about a size two (ugh.) with boots to die for. She had an Apple laptop and an emerald wedding band. (I suppose I was staring.)

I couldn't hear their conversation but she was clearly exasperated by something on her computer screen (later I learned it was a flight issue) but her husband didn't seem to share her angst. When he was called back for chemo, she was dragging up the rear and putting away her computer. Then she carefully stacked her four (yes FOUR!) empty styrofoam coffee cups (silly me, I reuse one), her empty cookie package and left them on the sofa!

She walked right past a trash can on the way into chemo. I was appalled. I got up, picked up her pile and walked them to the trash can, shaking my head at the gall of those kind of people.

About half an hour later (I was two hours late getting in for chemo), she came out, walked to the reception area, got a 'sign in' sheet to use for notepaper, whipped out her iphone and proceeded to be very unhappy with someone on the other end of that phone. She jotted notes, got angry and wadded up her paper and I thought "Oh no .. she's not .."

A Chinese lady (who was napping) had finished her coffee and the cup was sitting on the table beside her. Miss Snotty Trash Maker looked around, spotted the cup and put her wadded up paper in the lady's coffee cup! Then, again, she walked right past the trash can to stomp off into her husband's treatment room.

I looked at Dave, Dave looked at me with a big "No .. you don't!" look in his eye. Honestly, I'd have humilated her in that room full of people if only I could hear. Not hearing keeps me meek. But look out! When I get new hearing aids, I will be toting some new brass balls. And I will be prepared for Miss Snotty Trash Maker. What is wrong with people like that? If you know, please tell me? Meanwhile, I harbor a secret desire to see her again and give her a big ole piece of my mind ...

Chemo makes me feisty! Thankfully, I can only go for short bursts before I need a nap.

Thursday, January 27, 2011

It Was A Day From Hell ..

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010A vision in hospital gear, no?

So yesterday was port surgery day and baby, it was a long one! We arrived at 7:30, a full hour before my appointed time, but at MDA if you arrive early, generally, you get seen early. Generally, but not yesterday! It was 10:30 before they took me back for pre-op stuff: nakedness, compression hosiery, antibiotic IV, stuff like that. And it was 12:30 before they wheeled me to the OR. My nurse, Millie, was great! The anesthesiologist, Pascal, was from Ghana, West Africa .. And his last name was a hyphenated alphabet soup, hence his being called “Pascal”. He was about 6’5” and a handsome blue-black gentleman with a soft voice. I liked him immediately. And, despite the fact that he messed up my eye makeup during surgery, we parted as friends. (Even though in my medicated state I kept calling him Pasquale. He just smiled wider.)


They brought Dave back to the recovery room at 1:45 and we were there for more than an hour while I shed the remnants of my sleepy meds. I wasn’t really in any pain but I was sore. Sometime around 3:00, they wheeled me to chemo. Since I had missed lunch in recovery, I was hoping to get something to eat in Chemo since my half of a hamburger from supper the night before was long gone. My chemo nurse was less than wonderful. This was a first as all my nurses (and all the staff) have been great so far. Dave and I repeatedly told her that I couldn’t hear her soft voice and yet she seemed to refuse to speak up. Finally, I stopped trying to hear her. Dave asked her if I could get something to eat since I hadn’t eaten all day and she just walked out of the room. She didn’t offer juice, soda or anything. We didn’t LIKE her. The cafeteria closes at 3 PM .. So Dave finally went to the gift shop and spent eleven dollars on nuts, crackers and a package of cookies. I didn’t leave chemo until 5:30.


I missed my appointment with my oncologist due to all the dominos shifting, so that appointment was rescheduled for next week. Next Wednesday will be another full day starting at 8:30 with a consult with my breast surgeon, blood work, chemo and my oncology visit. Being sick is hard work!


So, my port is in! I have two incisions, one about 1.5” long where the port is in place and another .5” incision on my jugular vein which is where the threaded the lead for the port (I think.) It’s not really painful, just uncomfortable but I am not to do much for several days and no lifting for a couple of weeks.


While I was in surgery, they placed a needle in the port so I would be good to go for chemo. YAY! No more IV sticks or hide and seek veins. Chemo will be a total breeze now. I’m still not feeling any nausea and my only side effects are fatigue and hair loss. I can’t really complain about that, after all, it’s proof that the chemo is working and surely Herschel knows now that he is in DEEP SHIT.


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
So tired & hungry!

I feel so very blessed to have Dave who is with me always (unless I throw him out of my room like I did yesterday!) He made the unfortunate mistake of telling me to “settle down” which didn’t set well with a hungry Darlene. Fortunately, he didn’t go far. And when I woke up from my nap, he was there, by my bed, staring at me. Mama says I need to be nice to Dave and I know she’s right. After all, where on earth would I ever get another guy who makes me laugh every day AND pulls my underwear up for me when I can’t?

Monday, January 24, 2011

Mood Swing!

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
Darlene & Betsey

Someone I love and respect last week mentioned that I might be in denial about how sick I am. I would immediately DENY that I am in DENIAL. But I've been thinking about it .. It's so funny because I am like the Wiley Coyote of preparation .. and like Wiley, I seem to buy all my supplies at Acme. Without fail .. they fail.

I'm never really prepared for anything life dishes out, so maybe that's the lesson in this. Stop spending so much time getting "ready" for the next shoe to drop. Just enjoy the time without the dropping shoes. You think?

Yesterday, for just a few hours, I was really upset about my hair coming out. I knew (on some level) it was going to, but I harbored a secret hope that I would be one of those odd characters who gets to keep their hair all during chemo and beyond. Not gonna happen. All during the night I kept imagining waking to find all my hair on my pillow when I woke. That didn't happen either. It's coming out 15 strands at a time .. at least today it is.

When I look outside I know how the oak trees feel: cold, bare, naked, vulnerable. In the spring, when they leaf out I think I might be a little more jealous than awe-filled like I usually am in spring. But there will be another spring and I, too, will leaf out.

I am rambling. What I am trying to say is this: It's important for me that the Herschel blog be a brutally honest account of all I experience while on this path to healing. So that means I will post pictures, like yesterday, that graphically illustrate my sorrow, my fear, my pain. The thing is .. within a couple of hours I was better, laughing and enjoying a tiny piece of gooey butter cake and a glass of juice. I have reinvented, refined and exponentially magnified the term "Mood Swing". So don't worry about me too much, 'kay?

As for being in denial, I might be. I don't feel "sick". I'm not experiencing most of the known side effects of chemo (yet) and apart from being really, really tired all the time, I'm doing okay. This doesn't feel like "cancer" but Dave warns me that it could get a whole lot worse before it gets better. And I know that. But, you know what? I am done trying to 'get ready' for it. It's just a waste of time. Everyday is a new day and I'll just try my best to get through that one before I worry about the next one.

By the way, the picture is from Saturday. Dave and I, my son and his family visited some local friends who have a shooting range on their property. It was a beautiful day and my last opportunity to shoot my gun before the port is inserted on Wednesday. After that, and as long as it is in place, no more rifles for me. I loved being outside that day -- I've been a house mouse for weeks and it goes completely against my nature. I enjoyed our friend's hospitality and watching Jared and Dave play with their boy toys. It was a really good day. And twenty four hours later, I was completely distraught over my hair falling out. And twenty four hours after that, I am practicing with my scarves and contemplating getting "The Wig" out. It's just a journey .. and I'm taking it one day at a time. Life really does go on whether you have hair or not. Amazing, huh?

Sunday, January 23, 2011

Goodbye hair ..

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
..bitterly disappointed

Despite all my beliefs to the contrary, it turns out I am a mere mortal and susceptible to the consequences of chemo just like all my cancer sisters and brothers.

My hair is falling out.

Yesterday, I noticed my scalp was sore just like when, in grade school, my mother made my ponytail too tight. I was afraid it meant something .. and it did. Today when I run my fingers thru my hair, the hair comes with my fingers.

I thought I was prepared but Dave found me staring at a handful of it and the tears just flowed. Fortunately, Dave knows the best cure for hair loss and bit of a broken heart is to scoop me up and let me cry - just for a bit - and then to reassure me that all is well. Hair doesn't define me. For better or for worse ... life goes on .. and this too shall pass.

Tuesday (after a local ear, nose & throat appointment), we're off to Houston for afternoon bloodwork in preparation for my port surgery scheduled for Wednesday. After that, session four of round one chemo. Continued gratitude for your continued prayers. Much love, my faithful Herschel haters ..

Thursday, January 20, 2011

Good News/Bad News

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


The Bad News is that my one remaining living hearing aid died on the way into town yesterday. R.I.P. you expensive piece of plastic crap.

The GOOD NEWS is that I have an appointment Tuesday morning to get my ears vacuumed in preparation for the MDA audiologist to test me for NEW hearing aids. (Meanwhile everyone was very accommodating yesterday even though it's a pain to be around me with no hearing aids.)

HUH?


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

The Bad News is they stuck me in my thumb yesterday for chemo. Okay, not really my thumb but in a really weird place and, let me tell you, THAT DID NOT FEEL GOOD!

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


The GOOD NEWS is that that is the next to last IV stick as I am having surgery on Wednesday to implant my port. It's very cool .. and it's PURPLE!


All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010


The port will provide access for all my future chemo, CT Scans & MRI. The the port will go under by skin (you can read ALL about it here), and a needle will be inserted but it won't be the "hide and seek" we play with my veins now .. so my hands won't be stuck multiple times or in sensitive places.

And that, don't you know, is the goodest news of all!

Tuesday, January 18, 2011

Busy Day Tomorrow

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

Tomorrow we're leaving at 6:30 AM in order to make a 9:30 appointment with my port surgeon staff. Not sure what "port placement assessment" means. Aren't there only so many places it could go? Anyway .. he's up first.

At 11:00 I have my bloodwork for chemo. These are usually quickie appointments unless my veins don't cooperate. Another reason the port thingie is looking pretty good to me.

At noon, I'm scheduled for chemo no. 3. This means I am one quarter thru the first round. Despite my whiny attitude this past weekend, if it doesn't get any worse than it has so far, then I am a lucky girl. I feel pretty useless most of the time but when I consider that my priority should be getting well and not how spic and span my floors are .. then it's easier to deal with.

So, then, the last appointment is at 3:15 for anesthesia assessment (with regard to my port surgery). I always did like counting backwards .. I'm thinking they will push for port placement next Wednesday but I already have three appointments that day and three the following Wednesday so something tells me an overnight is in our future. Fortunately, an overnight is no big deal since we have awesome relatives that not only let us bunk in .. but bring our Maggie girl as well.

My hair seems to be holding tight. I still haven't taken Colleen O'Malley O'Hair out of the bag yet .. but I think her debut will be soon. If only I had an Irish brogue to go with. (An Irish brogue with a Texas drawl .. doncha know.)

Sunday, January 16, 2011

Blue and gray - wall to wall.

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

I wasn't going to share any of this because it's not happy, sunshiney news. And who wants to read about my funky blue days? But then, I realized it's not fair to only share the good days and besides .. the blue days will only make the good days all the more sweet, right?

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

So, I know that the weather (which, as you can see, is dismal) plays a part in my mood, the truth is I don't feel good today. Didn't feel good yesterday. My bones are achey and my tummy feels like I am on the tail end of too much fun. One New's Year's eve I foolishly sampled cognac after way too much champagne. Know what I learned? You can have even too much EXPENSIVE champagne and cognac doesn't go well on top of it.

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

I don't like being moody and blue, achey and icky. But I guess that is part of the territory. I felt similarly last weekend and then, Monday, Tuesday and Wednesday, I felt really good. So here's to a good tomorrow and one hopefully filled with sunshine - inside and out.




Friday, January 14, 2011

Port of Call ...

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010

So, MDA called yesterday and threw us into a bit of a tizzy.

Seems they want to install my port for chemo this month. I assumed it wouldn't go in until the first round was finished (mid March) as the Taxol I'm on is vein safe. The second round of chemo (affectionately known as "FAC") isn't so tissue friendly, hence the port delivery.

Given that they have had to use my hand for chemo both time (and took blood there last week as well), I'm not opposed to a little surgical "stick it" place. Dave isn't as happy about having plastics in my body ... see, he's kind of an au naturelle kind of guy.

We're meeting with the surgeon next week for a consult so we'll learn more about it then and, hopefully, Dave will feel better about it after.

Yesterday was kind of a funky day. He was quiet and irritable and I could tell stressed about things. It's the first time he's shown any sign of wear and tear. So I made him a pot of gumbo last night hoping to cheer him up.

I felt great all day yesterday but got pooped when we did our chicken chores. It's always harder in cold weather. But I slept all night (I don't usually) and woke up feeling feisty and fine this morning. We're off to do errands (MEXICAN FOOD) in a bit.

Thanks for all your prayers. Keep 'em coming .. please! We're doing really well and we just want to keep up this positive momentum as long as possible before I fall victim to the usual symptoms of chemo.

Wednesday, January 12, 2011

Chemo II - Easy Peasy

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
Chemo 2 (there was a DVD player!)

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
Tapped my hand again. Ugh.

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
My backup singers ..

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
How could I ever do this without him?

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
All done - piece of cake ..

All text & photographs on Dirt Road Heaven © by Darlene Meader Riggs, 2010
Da bear .. Love my Saul bear ..

Two middle eastern women in burkas, a Chinese woman, an African American woman and two Caucasian women go into a bar ...

Just kidding .. these were all the women waiting in my suite for chemo today. The older middle eastern woman was the patient, she was heavy but had bad color and clearly didn't feel well. The younger woman was likely her daughter and all I could see were her eyes but they smiled back at mine. There was a man (who didn't sit with them) who, I suppose, was their token male.

The black lady was frail and in a wheel chair. She was cold and requested a blanket before they took her back for her meds. She didn't look like she felt very well either. She sat with her back to me and held her head in her hands mostly. Her son and daughter-in-law were with her but she didn't converse much.

The Chinese lady appeared to be alone. She wore a sweater cap but I bet she was bald under it. She walked like her joints ached and she didn't smile once, even though I smiled at her repeatedly. Oh well. You can't win 'em all.

The white lady was very frail, in a wheelchair, in a turban, in a blanket and never made eye contact with me. I don't think she was much older than me (based on the age of her daughter pushing her chair) but she looked much older. I wonder what she looked like before cancer ....

My entourage filled the sofa. Dave, me, Stevie Nicks, Don Henley, Elton John, Sean Colvin, Lindsay Buckingham, Stephen Stills, David Crosby, Graham Nash ..

Yes. You read me right. Of course they were on my MP3 player .. but still. Nice company, huh? I felt a little guilty (well, more than a little) that I could plug in, turn on and tried (without success) to sit still during "Building The Perfect Beast". I still feel good. Nothing hurts, nothing is sick. I'm not green. I still have hair - sorta. I'm not unhappy.

It's because of you, you know. I imagine each of you as a big Macy's Thanksgiving Day Balloons ... ;) .... and you're all holding me up. It's really cool .. you all have these silly grins and keep bumping into each other .. and there I am, smack dab in the middle with my toes barely touching the ground. Aaaaah. My balloon buddies .. you ROCK!